50 days of River

Fifty days of River: Connection, isolation and everything in between.

life

  • When the Body Says No

    Sunday Night: The Start of the Spiral Sunday night didn’t quite go to plan. The kids went to bed without too much fuss. Kike and I even went to bed at a reasonable time but I didn’t sleep well. Around 3am, Summer began coughing. We checked on her but she was fast asleep. I tried… Read more

  • It Got Better

    Thursday Evening: The Turning Point It’s Sunday, the end of the October half-term and I’m sure you’ll all be pleased to hear, it got better. On Thursday evening, two things happened.First, I messaged my friend who I met on holiday. She told me to try, however hard, to be positive. Her son can pick up… Read more

  • Wednesday Morning: The Crash 6.30 a.m. came round quickly this morning.I know I said my positivity was low but I didn’t think I would crash this fast. It’s 1.30 p.m. and I’ve been crying for over an hour. I’ve gone back to bed and I don’t want to come out.River is watching endless YouTube and… Read more

  • Early Morning Thoughts It’s Saturday morning, 8.30 a.m. and I’m cooking croissants and cutting up strawberries for weekend breakfast. I’m feeling pretty good because it’s Half-Term.Look how far I’ve come. This Autumn Term has been a long eight weeks.I’m not interested in people who complain about teachers and their time off; if it bothers you… Read more

  • What a Week

    The Refund Battle What a week, it felt long and heavy. After the phone call about the EHCP being refused by the school, I spent the rest of the week unable to shake off the tiredness. This was not helped by the sporting company being very hard to deal with when it came to getting… Read more

  • One Day at a Time

    “Well, that was bleak.” It’s been an emotional day and I thought, well, this is what this space is for. Last night we watched a documentary on BBC1: Panorama: Autism, School and Families on the Edge.It followed around four families all having to home-school as the schools their kids attended couldn’t meet or fund their… Read more

  • River’s October Obsession

    So, it’s October 1st and you know what that means.Well, actually, you probably don’t… unless you live in a house with a small autistic boy who has been obsessed with Halloween since July 2024. Today marks the official start of Halloween in our house. And honestly? If you can’t beat them, join them. Halloween: A… Read more

  • Day 49: Back to Nursery

    Midnight Cleaning Fantasies So, I didn’t end up going to sleep, obviously. A bit of scrolling turned into browsing cleaning websites. I’ve said for ages I need a cleaner. It’s just another job that needs doing and rarely gets done. We’re not messy but the house never gets a proper deep clean and it’s starting… Read more

  • Day 48: The Never-Ending List

    Morning Chaos Another wet start. I’m going to do some research into buying pads to go on the bed. There’s so much stuff these days I’m sure I can find something. Also, something I’ve been putting off, his bedtime bottle. It’s something that has always soothed him and I’ve been so reluctant to take it… Read more

  • Broken Night River’s night was broken. Twice he wet through his sheets. I’m not sure what caused it. To be clear, River isn’t fully potty trained yet. Last summer we worked so hard on this as he was starting Nursery and I knew what children at that age are supposed to do. At the time,… Read more