50 days of River

Fifty days of River: Connection, isolation and everything in between.

life

  • Being Honest About What We Need

    Just a quick one tonight but I wanted to write about something. I still haven’t found anyone to replace our babysitter and there is literally no one else to ask. Which means, for now, it’s just the four of us. No evenings out, no date nights, no popping out to see friends. I keep wondering… Read more

  • Why charity feels different when your child is the one on the screen

    A Quiet Friday Night… Or So We Thought So it’s been a little while since I wrote anything. I’ve been having a few health complications which has been very energy draining, leaving me no time to write down my endless thoughts. I think I’m on the mend now, so let’s get into it. Friday night,… Read more

  • Where Does River Fit?

    Sunday evening It’s Sunday evening and I’m sitting here watching Wicked in preparation for the new one coming out in a couple of weeks. Summer (and I) are very excited and we’ve spent part of the weekend decorating our house on Roblox in our given characters of Glinda and Elphaba. River, after fifteen minutes of… Read more

  • When the Body Says No

    Sunday Night: The Start of the Spiral Sunday night didn’t quite go to plan. The kids went to bed without too much fuss. Kike and I even went to bed at a reasonable time but I didn’t sleep well. Around 3am, Summer began coughing. We checked on her but she was fast asleep. I tried… Read more

  • It Got Better

    Thursday Evening: The Turning Point It’s Sunday, the end of the October half-term and I’m sure you’ll all be pleased to hear, it got better. On Thursday evening, two things happened.First, I messaged my friend who I met on holiday. She told me to try, however hard, to be positive. Her son can pick up… Read more

  • It’s Only Wednesday(and Thursday)

    Wednesday Morning: The Crash 6.30 a.m. came round quickly this morning.I know I said my positivity was low but I didn’t think I would crash this fast. It’s 1.30 p.m. and I’ve been crying for over an hour. I’ve gone back to bed and I don’t want to come out.River is watching endless YouTube and… Read more

  • Half-Term (Progress, Not Perfection)

    Early Morning Thoughts It’s Saturday morning, 8.30 a.m. and I’m cooking croissants and cutting up strawberries for weekend breakfast. I’m feeling pretty good because it’s Half-Term.Look how far I’ve come. This Autumn Term has been a long eight weeks.I’m not interested in people who complain about teachers and their time off; if it bothers you… Read more

  • What a Week

    The Refund Battle What a week, it felt long and heavy. After the phone call about the EHCP being refused by the school, I spent the rest of the week unable to shake off the tiredness. This was not helped by the sporting company being very hard to deal with when it came to getting… Read more

  • One Day at a Time

    “Well, that was bleak.” It’s been an emotional day and I thought, well, this is what this space is for. Last night we watched a documentary on BBC1: Panorama: Autism, School and Families on the Edge.It followed around four families all having to home-school as the schools their kids attended couldn’t meet or fund their… Read more

  • River’s October Obsession

    So, it’s October 1st and you know what that means.Well, actually, you probably don’t… unless you live in a house with a small autistic boy who has been obsessed with Halloween since July 2024. Today marks the official start of Halloween in our house. And honestly? If you can’t beat them, join them. Halloween: A… Read more