50 days of River

Fifty days of River: Connection, isolation and everything in between.

  • Trying Something New

    A Family of Sport Yesterday, we tried something new. We really want River to be able to enjoy and join in with sports. Kike has been an athlete all of his life, always being in teams, gaining a basketball scholarship, finding a love of jiu-jitsu and now obviously owning his CrossFit gym. Believe it or… Read more

  • A Parenting Fail (Or Was It?) So just a quick one tonight. I wasn’t planning on writing anything as it’s been a long week and honestly I’m very tired. But today I did a classic parenting fail and thought I should reflect on it. Summer’s Cultural Day At my daughter’s school they had a Cultural… Read more

  • So, it’s October 1st and you know what that means.Well, actually, you probably don’t… unless you live in a house with a small autistic boy who has been obsessed with Halloween since July 2024. Today marks the official start of Halloween in our house. And honestly? If you can’t beat them, join them. Halloween: A… Read more

  • River’s EHCP

    Big news in our house on Friday, River received his EHCP. What is an EHCP? An Education, Health and Care Plan (EHCP) is a legal document for children and young people with special educational needs or disabilities (SEND). It pulls together input from psychologists, occupational therapists, speech and language therapists and sets out: For River,… Read more

  • Autism is Not an Epidemic

    Like many of you I’ve been following the latest comments from President Donald Trump and Robert F. Kennedy Jr. with anger and sadness. The National Autistic Society have already issued a powerful statement calling out their “fake news and offensive statements,” and I want to stand alongside them and alongside Autistic people everywhere. Words Have… Read more

  • BEYOND 50 DAYS…

    Finding Belonging and Asking Bigger Questions So, I’m back!I’ve had so many lovely messages from people saying they loved the blog and feel a little lost without it and honestly, I think I am too. I can’t commit to every day but I’m sure I can manage a couple a week: condensing the good, the… Read more

  • So here we are. Day 50. When I started writing back in July, it was less about telling a story and more about surviving one. Seven long weeks stretched ahead of us with no Nursery, two children at home and me already tired before we’d even begun. I wrote one day at a time because… Read more

  • Day 49: Back to Nursery

    Midnight Cleaning Fantasies So, I didn’t end up going to sleep, obviously. A bit of scrolling turned into browsing cleaning websites. I’ve said for ages I need a cleaner. It’s just another job that needs doing and rarely gets done. We’re not messy but the house never gets a proper deep clean and it’s starting… Read more

  • Morning Chaos Another wet start. I’m going to do some research into buying pads to go on the bed. There’s so much stuff these days I’m sure I can find something. Also, something I’ve been putting off, his bedtime bottle. It’s something that has always soothed him and I’ve been so reluctant to take it… Read more

  • A Slow Start to Sunday I asked Kike to take Summer to swimming this morning. I’d gone to bed fairly early but I just couldn’t face another 9am club. It still meant I was up with River but once he’s got his breakfast and his shows, he’s pretty easy company. I haven’t done a full… Read more