50 days of River

Fifty days of River: Connection, isolation and everything in between.

autism

  • Christmas, Slowed Right Down

    It’s 5pm on Christmas Day and I’m back at the playground, listening to Disney tracks in Spanish. So much for a traditional Christmas. I woke up at 4am and put a few little presents at the end of each of their beds. I was awake again by 7, convinced Summer must be up but no.8.30am, Read more

  • Saturday evening, just the kids and I for a rainy Saturday as Kike had a work thing. I think all 3 of us just wanted a chilled day, so that’s exactly what we’ve had. I got various toys out for River to walk round, mainly settling on a rainbow pinwheel. Summer requested her Lego so Read more

  • Where Does River Fit?

    Sunday evening It’s Sunday evening and I’m sitting here watching Wicked in preparation for the new one coming out in a couple of weeks. Summer (and I) are very excited and we’ve spent part of the weekend decorating our house on Roblox in our given characters of Glinda and Elphaba. River, after fifteen minutes of Read more

  • What a Week

    The Refund Battle What a week, it felt long and heavy. After the phone call about the EHCP being refused by the school, I spent the rest of the week unable to shake off the tiredness. This was not helped by the sporting company being very hard to deal with when it came to getting Read more

  • One Day at a Time

    “Well, that was bleak.” It’s been an emotional day and I thought, well, this is what this space is for. Last night we watched a documentary on BBC1: Panorama: Autism, School and Families on the Edge.It followed around four families all having to home-school as the schools their kids attended couldn’t meet or fund their Read more

  • Trying Something New

    A Family of Sport Yesterday, we tried something new. We really want River to be able to enjoy and join in with sports. Kike has been an athlete all of his life, always being in teams, gaining a basketball scholarship, finding a love of jiu-jitsu and now obviously owning his CrossFit gym. Believe it or Read more

  • A Parenting Fail (Or Was It?) So just a quick one tonight. I wasn’t planning on writing anything as it’s been a long week and honestly I’m very tired. But today I did a classic parenting fail and thought I should reflect on it. Summer’s Cultural Day At my daughter’s school they had a Cultural Read more

  • River’s October Obsession

    So, it’s October 1st and you know what that means.Well, actually, you probably don’t… unless you live in a house with a small autistic boy who has been obsessed with Halloween since July 2024. Today marks the official start of Halloween in our house. And honestly? If you can’t beat them, join them. Halloween: A Read more

  • River’s EHCP

    Big news in our house on Friday, River received his EHCP. What is an EHCP? An Education, Health and Care Plan (EHCP) is a legal document for children and young people with special educational needs or disabilities (SEND). It pulls together input from psychologists, occupational therapists, speech and language therapists and sets out: For River, Read more

  • Autism is Not an Epidemic

    Like many of you I’ve been following the latest comments from President Donald Trump and Robert F. Kennedy Jr. with anger and sadness. The National Autistic Society have already issued a powerful statement calling out their “fake news and offensive statements,” and I want to stand alongside them and alongside Autistic people everywhere. Words Have Read more