50 days of River

Fifty days of River: Connection, isolation and everything in between.

autism

  • It Was Never About the Costume

    Back to Reality First week back has gone OK. We all struggled with the mornings, too used to our 9am holiday wake-ups and late-night entertainment. Getting up and dressed in cloudy London is a sharp snap back to reality. River has upgraded his “NO NURSERY” to “I DON’T WANT TO GO TO NURSERY,” which we’re… Read more

  • holiday limits

    Poolside Battles A few tears today. It’s our last day and I’m ok with that. River has reached his holiday limit and, if I’m honest, I think we all have. We could probably do with seeing some different faces. After River point blank refusing to go anywhere near the pool all week, yesterday I put… Read more

  • Christmas, Slowed Right Down

    It’s 5pm on Christmas Day and I’m back at the playground, listening to Disney tracks in Spanish. So much for a traditional Christmas. I woke up at 4am and put a few little presents at the end of each of their beds. I was awake again by 7, convinced Summer must be up but no.8.30am,… Read more

  • The Coat Conundrum (and the “Big Bike”)

    Saturday evening, just the kids and I for a rainy Saturday as Kike had a work thing. I think all 3 of us just wanted a chilled day, so that’s exactly what we’ve had. I got various toys out for River to walk round, mainly settling on a rainbow pinwheel. Summer requested her Lego so… Read more

  • Where Does River Fit?

    Sunday evening It’s Sunday evening and I’m sitting here watching Wicked in preparation for the new one coming out in a couple of weeks. Summer (and I) are very excited and we’ve spent part of the weekend decorating our house on Roblox in our given characters of Glinda and Elphaba. River, after fifteen minutes of… Read more

  • What a Week

    The Refund Battle What a week, it felt long and heavy. After the phone call about the EHCP being refused by the school, I spent the rest of the week unable to shake off the tiredness. This was not helped by the sporting company being very hard to deal with when it came to getting… Read more

  • One Day at a Time

    “Well, that was bleak.” It’s been an emotional day and I thought, well, this is what this space is for. Last night we watched a documentary on BBC1: Panorama: Autism, School and Families on the Edge.It followed around four families all having to home-school as the schools their kids attended couldn’t meet or fund their… Read more

  • Trying Something New

    A Family of Sport Yesterday, we tried something new. We really want River to be able to enjoy and join in with sports. Kike has been an athlete all of his life, always being in teams, gaining a basketball scholarship, finding a love of jiu-jitsu and now obviously owning his CrossFit gym. Believe it or… Read more

  • The Day I Sent River in Uniform

    A Parenting Fail (Or Was It?) So just a quick one tonight. I wasn’t planning on writing anything as it’s been a long week and honestly I’m very tired. But today I did a classic parenting fail and thought I should reflect on it. Summer’s Cultural Day At my daughter’s school they had a Cultural… Read more

  • River’s October Obsession

    So, it’s October 1st and you know what that means.Well, actually, you probably don’t… unless you live in a house with a small autistic boy who has been obsessed with Halloween since July 2024. Today marks the official start of Halloween in our house. And honestly? If you can’t beat them, join them. Halloween: A… Read more