50 days of River

Fifty days of River: Connection, isolation and everything in between.

asd

  • Sunday: A Little Freedom Two days into half-term and I’m already tired, not sure how much more I can take. The weekend went well though, largely because I took myself to the cinema on my own, one of my favourite things to do.I sat right at the back, arms buried in my big coat, beanie… Read more

  • Early Morning Thoughts It’s Saturday morning, 8.30 a.m. and I’m cooking croissants and cutting up strawberries for weekend breakfast. I’m feeling pretty good because it’s Half-Term.Look how far I’ve come. This Autumn Term has been a long eight weeks.I’m not interested in people who complain about teachers and their time off; if it bothers you… Read more

  • Another Week

    Sunday Morning Another week comes to an end and I was trying to think about what to write about. A story came onto my feed but I didn’t want to start with that so I thought I’d do a typical Sunday in our household. I wake up at 6.45am to the blissful tones of “MUMMY!… Read more

  • What a Week

    The Refund Battle What a week, it felt long and heavy. After the phone call about the EHCP being refused by the school, I spent the rest of the week unable to shake off the tiredness. This was not helped by the sporting company being very hard to deal with when it came to getting… Read more

  • One Day at a Time

    “Well, that was bleak.” It’s been an emotional day and I thought, well, this is what this space is for. Last night we watched a documentary on BBC1: Panorama: Autism, School and Families on the Edge.It followed around four families all having to home-school as the schools their kids attended couldn’t meet or fund their… Read more

  • Trying Something New

    A Family of Sport Yesterday, we tried something new. We really want River to be able to enjoy and join in with sports. Kike has been an athlete all of his life, always being in teams, gaining a basketball scholarship, finding a love of jiu-jitsu and now obviously owning his CrossFit gym. Believe it or… Read more

  • A Parenting Fail (Or Was It?) So just a quick one tonight. I wasn’t planning on writing anything as it’s been a long week and honestly I’m very tired. But today I did a classic parenting fail and thought I should reflect on it. Summer’s Cultural Day At my daughter’s school they had a Cultural… Read more

  • River’s October Obsession

    So, it’s October 1st and you know what that means.Well, actually, you probably don’t… unless you live in a house with a small autistic boy who has been obsessed with Halloween since July 2024. Today marks the official start of Halloween in our house. And honestly? If you can’t beat them, join them. Halloween: A… Read more

  • Autism is Not an Epidemic

    Like many of you I’ve been following the latest comments from President Donald Trump and Robert F. Kennedy Jr. with anger and sadness. The National Autistic Society have already issued a powerful statement calling out their “fake news and offensive statements,” and I want to stand alongside them and alongside Autistic people everywhere. Words Have… Read more

  • BEYOND 50 DAYS…

    Finding Belonging and Asking Bigger Questions So, I’m back!I’ve had so many lovely messages from people saying they loved the blog and feel a little lost without it and honestly, I think I am too. I can’t commit to every day but I’m sure I can manage a couple a week: condensing the good, the… Read more